The News

It is the weekend and we have quickly learned that some of the daily essentials are not around.. mostly doctors.  Well, I understand that,  they need the weekend too.. what we sometimes forget is that we don’t own them…they do have a life away from their patients. Nonetheless we were on the proverbial pins and needles yesterday waiting for Dr. Lee to show up so we could find out if Adam’s seizures had given them enough data to go forward… we DID NOT want to go through the gauntlet again.

Time dragged on, minutes turned into hours and the hours loafed by with no sighting of Dr. Lee and no word on the seizure data.  We pretty much had given up, it was 8:00pm and we consigned ourselves to wait until Monday in order to find out any news for Adam.  As you might guess…miracles never cease… and who should suddenly appear at our room…you got it.. Dr. Lee.

Always calm and never in a hurry, Dr. Lee carefully spent time with us as we all stood at the foot of Adam’s bed. He very kindly explained that there are two areas of concern; The most recent seizures showed the focal area being located in Adam’s Left Frontal lobe.. higher up and back on his head.  In addition, there are also concerns from two of the other seizures, one seizure the first day and the other that happened on Friday, both point to the Left Temporal Lobe.. essentially two hotspots acting on their own.

He proposed three courses of action… no decisions need to be made at this time… we will talk more about it with him on Monday.

 First Option:  They remove (resect) both areas at the next surgery which is scheduled for this coming Wednesday.

Second Option: They only remove the Frontal Lobe area and wait and see what happens with the Temporal Lobe Area.

Third Option: They remove the Frontal Lobe and leave the remaining grids over his Left Temporal Lobe and continue monitoring, then if needed they can go back in and resect this area.

Benefits vs Risks:

First Option: Benefit: We get it done and Adam can begin the road to recovery. Risk: But if they remove too much brain tissue, Adam has an unneeded deficit of brain tissue and he has to live with the consequences the rest of his life.

Second Option:  Benefit: Less aggressive, less tissue removal, less after effects. Risk:  If we only remove the Frontal Lobe and the Temporal Lobe continues to induce seizures; Adam would have to go back in the hospital and repeat most of what we have done… Having two more surgeries.

Third Option: Benefit: We get a chance to take a look and see what the effects are of only one area being resected.  This one makes sense to me, but the risk of infection dramatically increases the longer we wait.  I don’t understand what this entails but I am pretty sure we don’t want to mess with an infection in the brain.

22 July 2012:  Throughout the night (last night) Adam has been experiencing a good amount of pain in his head; this has continued into the morning. He is on narcotics to keep the pain at bay.

I was sitting by his bedside this morning, trying to talk with him; Adam very much enjoys the one-on-one conversations. I had hopes of helping him with his discomfort.. he hurts, he is sweating and uncomfortable.  He couldn’t talk much, but he gently reached over and took my right hand with his left and held it.  I stopped talking and just sat there looking at him, he seemed to find a little peace.  He fell asleep holding my hand. I bowed my head with tears in my eyes and offered a prayer for him.

Oh Adam I love you… hang in there.

Rest My Son.. We Love You

Categories: Uncategorized | 6 Comments

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6 thoughts on “The News

  1. sunnysmiths

    Sending much love and prayers for Adam and the rest of your family. Thank you for keeping us posted and for the wonderful example your family is to ours. Please let us know whatever we can do to serve you.
    Michael & Cindy Smith

  2. Marcie Farnsworth

    Beautiful Adam looks like he is finally getting a rest here. How wonderful , Mike, that you have been able to be there for him at every moment. Thank you for keeping all of us informed so that we know exactly what to pray for. Of course we , as well as so many others , are praying for Adam and all of you and sending love, love, love. Marcïe and Scott

  3. Karen Davidson

    Adam,
    Eric and I are very concerned for you. You have been in our thoughts and prayers especially this day as we have joined those fasting for you. We will continue to pray for you and read your father’s comments here in the days ahead. You have such wonderful, caring parents! We are praying for them too. At this time we hope you will be buoyed up the love we all have for you. We will be following your progress daily. We want all all to go very well for you
    Karen Davidson.

  4. God Bless you Adam!!!!!!!! We love you so much!!!! You are such an inspiration to us, and the bravest person I know!!!! I really mean that!!!!! There is no question in my mind that the Lord is with you Adam, and that He is turning this whole situation and all you have suffered for good. He didn’t cause it, but Through this He is making of you a solid rock of a person, a warrior for His purposes, an inspiration to all!!!! The Lord has placed a great call on your life, as I write this I feel his spirit powerfully confirming this to me even more!! Adam, stay focused on HIM the scriptures tell us “my grace is sufficient”, His grace, His strength is with you. Stay focused on your healing, see yourself well, healed and recovered, and your body will move in that direction as you do!! “Now faith is the substance of things hoped for, the evidence of things not seen” Hebrews 11:1. ” ….faith is things which are hoped for and not seen; wherefore, dispute not because ye see not, for ye recieve no witness until the trial of your faith.” Our prayers and our faith are with you. God Bless! We love you!! Love, Cathy

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